14 week appointment

Hooray for the 2nd trimester!!!!! There were many times over the past several years that I never thought I'd get here!

I had my first visit with the new OB today. I loved her. She is really, really great. (Completely the opposite of that horrible nurse.) She is also (more importantly) very on top of things. Here's the recap:

My next appointment is in 4 weeks, when I will be 18 weeks. That will be my last normal appointment. After that I will have appointments and ultrasounds every 1 - 2 weeks (starting at 20 weeks) through the end of the 2nd trimester. 2 weeks if things are going well, less if they feel like I need to be watched more carefully.

Starting in the 3rd trimester (27/28 weeks) I will have twice weekly appointments / ultrasounds until delivery.

We will be able to fill up a photo album before the child is even born.

Why all the appointments? Well, this is a high risk pregnancy. I've already had one preemie due to pre-term labor, I had pre-eclampsia in my last pregnancy, and I have multiple clotting disorders. What this means is that I'm at a higher risk for things like pre-term labor, pre-eclampsia, fetal growth restriction, problems with the placenta, and low amniotic fluid.

Scary, yes. BUT I will be watched like a hawk. I have also developed a loud mouth since Alice was born. I am not afraid to speak up to doctors and to advocate for myself (or my child) when I feel that something is wrong. I have friends who have had similar medical issues who have done very well, so this CAN be done. We're choosing optimism.

Lovely Parting Gifts

I had my post-op appointment yesterday. It was a super fast appointment that took forever. 90 minutes in the office for 5 minutes of face time.

I got to see the pathologist report. It was short - less than 10 words.

male fetus
cause of demise: trisomy 20

Trisomy 21 causes Down Syndrome. Trisomy 20 causes miscarriages.

It was random - truly bad luck - and, since I am young(ish), it is no more likely to happen again than it was to happen in the first place.

The whole thing reminded me of Wheel of Fortune where, after not solving the final puzzle, the contestant is shown what they would have won if only they had picked different letters.

A boy. A son. A brother.

We really wanted a boy.

My doctor showed me the report to give us some closure. And you know what?

It has.

What Doesn't Kill You - Part 1

January was a spectacular month for us, and not in a good way. I've gone back and forth about whether I wanted to write about everything that has happened. Miscarriage, for whatever reason, is not something people talk about. If it makes you squeamish you might want to skip out on this.

Right after Thanksgiving I found out I was pregnant. (don't get excited.) As I've shared before, I don't "do" pregnancy well. Actually, that is a gross understatement. Without serious ongoing medical intervention, there is very little chance that I will ever carry a pregnancy past the first trimester. Alice was (is) a miracle.

In the month of December, I saw my doctor 10 times. I had so much lab work done that my one decent vein went on strike. Every day I injected myself with an anticoagulant. When I woke up in the morning I prayed for strength and grace to get through the day and when I went to bed at night I thanked God for another day spent pregnant.

In 30 days I had 3 ultrasounds. The first two left us hopeful; the last, devastated. On New Year's Eve, while people were making merry and counting down to midnight, I was sleeping off the good drugs the anaesthesiologist gave me and wondering what the hell went wrong.

We were shocked and grieving. This is my first miscarriage with my current doctor, but it is officially my 4th. He had started to give me the usual speech about grieving, then paused and said, "Unfortunately you are an expert at this." Indeed.

This is by far the worst loss we've been through. I always thought that having an ultrasound and not seeing anything was the worst thing in the world (at least in the baby-making world). I was wrong. Watching your babies heart flutter at one appointment only to see complete stillness at the next is a pain that is indescribable.

In the days that followed, Tim and I had very little patience for poor Alice. A few days after my surgery I was feeling pretty good physically, so we decided to visit friends in Nashville. They have three busy children and we felt the change of scenery would do all of us good.

A few days into our visit, Alice got sick. She started throwing up and couldn't stop. All day, and all the way home from Nashville my poor girl couldn't keep anything down.

We got back into town and Tim suggested that maybe we should bypass home and take her straight to the ER. From the back seat Alice yelled, "I'm STARVING!!!! Can we please go to the Mexican restaurant and THEN go to the hospital? I want an enchilada."

Surely a child who is requesting enchiladas can't be that sick, right?

Wrong.

Better

This morning marked 24 hours without a fever, so I am officially un-contagious. I celebrated by going to the grocery store. You know things are desperate when you wonder if mixing jello and applesauce is a good idea and start looking at sweetened condensed milk as a viable alternative for the real thing. Still feeling under the weather and moving slower than usual. I have much more energy now than I did yesterday though. I even cut WG's Halloween Costume out tonight. It was a kind of now or never situation and the pink sequined dinosaur costume she's worn for two years has been promised to another little girl... WG is going to be a bird this year. A pink bird with lots and lots of feathers. Maybe a crown, too. I'll post pics when I get it sewn up.

Uncle!

So, turns out I was a bit too optimistic in that last post. H1N1 threw me flat on my back yesterday. It was quite sudden. I went from being just a bit tired and achy to full out body shakes, extreme pain and a 104 degree fever in a few hours. Not fun. Tim took me to the ER where I got a nice shot of something that took away some of the pain and brought my temp down to a much more pleasant 100. I'm feeling much more human today. Not *well* by any stretch, but I'm also not huddled under a blanket shaking. I'm out of work for the week and was told to stay in bed (no problem!) and drink lots of fluids.

This happened WHILE I was taking tamiflu. (day 3 out of 5) I don't want to think about how bad it would have been without the tamiflu.

Seriously consider getting the vax. This is a nasty, nasty virus.

Oink

Yup, we've got the dreaded H1N1. Actually, Wondergirl has the dreaded H1N1. Tim and I just aren't feeling great. All three of us are taking Tamiflu, which a wonderful wonderful drug. Really. The exhaustion with this, even with the Tamiflu, is incredible. WG described it as feeling wobbly. That's a pretty good description. We're all slow and taking lots of naps, but I imagine we'd all be in bed all day if it weren't for the Tamiflu.

So, lots of TV and quiet crafts for Wondergirl. Here she is making yarn pom poms. I used to make pom poms all the time at Grandma G's house and I'm tickled that Wondergirl is enjoying them too.

Wondergirl -vs- The Garden

Remember this?


That was taken last summer when WG ventured into the "jungle" at the back of our yard, picked some poison ivy and smeared it all over her face.

I took these today:



No, it's not poison ivy. She learned that lesson. (And, can I say that I cannot believe how much more grown up WG looks compared to last summer?!?!)

WG and the neighbor girls often play together through the fence. I thought things had been peaceful for too long and when I glanced out the window I saw elder neighbor girl slamming a cucumber over and over into the fence. WG and the elder neighbor child decided it would be a good idea to make slop stew in WG's wagon. WG picked 1/2 our garden, including every single one of our peppers, and both girls smashed it all up in her wagon.

Needless to say that was the end of playing outside for WG that day. She came in, sobbing. She was in her room and all of a sudden started screaming that her face hurt. All of our peppers were hot peppers. Even the bell peppers cross bred with something and became mutant gigantic hot peppers. She must have had pepper juice on her hands because she BURNED her face. It is actually a lot better now. Right after it happened on Monday her entire eye was purplish red and puffy.

Next summer we will laugh about this. Maybe.

How Did We Get Here, Anyway?

It occurs to me that our reason for having WG on a gluten free diet is no where on this site. A lot of you know the story, but for those who don't, here it is.

The summer before WG turned three she got sick. The symptom we noticed most was her thirst. She was guzzling water. Knowing that doctors like hard data we started tracking her intake to see if it really was a problem worthy of a phone call. She was drinking up to 80 oz of water a day. We would put her to bed with a full sippy cup and she would drain it and cry for a refill in the middle of the night. We called the pediatrician's office and were advised to cut her off or offer her alternatives like fruit or popsicles. We were also told that since it *was* summer and we *do* live in the South drinking a lot of water was not necessarily an abnormal thing. It was not unreasonable advice.

We tried to limit WG's intake. That lasted exactly one day. First she screamed when I wouldn't refill her sippy cup and then she got creative. I caught her drinking from the cat's dish. Later I saw her headed for the toilet with her cup. What goes in must come out. WG was also urinating A LOT. She wasn't potty trained yet and I would put a fresh diaper on her only to have to change her clothes five minutes later because she had peed through the diaper.

The pediatrician did a diabetes test. It was negative. The pediatrician ran some other tests which showed some abnormalities in her kidney function. At that time we were refered to a pediatric nephrologist as well as a pediatric endocrinologist.

The pediatric nephrologist was a jerk. His nurse was a jerk. I wasn't wild about his office staff either. He ordered the tests that showed her wonky kidney functioning to be repeated because, in addition to the excessive peeing, WG had a pattern of diarrhea followed by constipation. He told us that would skew the test results and that we needed to bring her in for labwork after she had had normal bowel movements for at least 3 days.

Nearly a month later this is the conversation I had with his jerky nurse:

Nurse: "We are waiting on WG's lab results. Why haven't you had her labs done? This is really important."

Me: "Well, the doc said the first results were skewed because she had diarrhea. He said to wait until she had normal bowel movements for three days before having the labs drawn. She has not had normal bowel movements for three days in a row yet."

Nurse: "You really need to have her blood drawn."

Me: "Well, I can bring her in, but she hasn't had normal bowel movements for three days and I'd really hate to have to repeat this test for a third time. What would you like me to do?"

Nurse: "She needs to have normal bowel movements for three days."

Me: "Okay, but then you're going to have to wait awhile because I don't think she has had three days in a row of normal bowel movements her entire life."

Eventually we got the labs drawn. I think we were "blessed" with three days in a row of constipation and I decided to define that as normal to get the nurse off my back. These labs still came back somewhat abnormal but the pedi nephro dismissed them and us. I was not sad. Of all the docs that WG has seen he is the only one that I knew I could not work with on a regular basis. He has gotten rave reviews from other patients, by the way. We just had a complete personality clash.

The pediatric endocrinologist was not a jerk. I actually liked her a lot. She tested WG for a bunch of things. WG tested negative for all of them.

Finally she said, "I notice that there is a family history of mental illness. Excessive water drinking can be a sign of schizophrenia. You did mention she has terrible temper tantrums. Do you think there is a possibility that WG could be schizophrenic, bipolar or OCD?"

We were a bit stunned that someone (and someone who was NOT a mental health professional) would postulate that our 2 year old was schizophrenic. I think our answer to her was something along the lines of, "No, we don't think that's a possiblity. Perhaps in 10 years or so we might consider that, but not right now."

Our pediatrician (whom we completely adore) was a bit stumped at that point. She sent us back to the GI doc that WG had been seeing on and off since birth. She had been talking to him about WG and he suggested that the excessive water intake was actually due dehydration from her chronic pattern of constipation / diarrhea. He tested her for Celiac Disease and made a follow up appointment to find out the results.

Around that time a friend and I had decided to give the South Beach diet a whirl. I don't short order cook for my family, so WG and Tim were basically eating what I was eating: lean meats, fruit and veggies. Grains were minimized.

WG started to get better. I mentioned to my mom that the GI doc was testing her for Celiac Disease and my mom told me that quite a few people in our family have been diagnosed with Celiac. With that knowledge, we took WG off gluten completely. Quite simply, she got better. She stopped seeking out water. The dark circles under her eyes disapeared. Her tantrums significantly diminished. She gained some weight (which was a good thing!), and she had normal bowel movements for the first time in her life.

Thinking that maybe we were seeing results because we were desperate for answers, we added gluten back into her diet to see what would happen. Her symptoms returned full-force.

At WG's follow-up GI appointment, we were told that her tests for Celiac were negative. She does not have the Celiac gene. Can she eat gluten? Absolutely not. Her pediatrician and her GI docs have said that she needs to stay on the gluten free diet as long as it is beneficial to her.

The gluten free diet has also been beneficial for Tim and I, but that is a whole other post!

DIY Gluten Free Trial

Whoa... This is post #101! And I'm warning you, it's a long one. I've had a few people ask me about doing a gluten free trial. This is an email I have sent to a few friends and I decided to post it here for easy reference.

First off, If you suspect that you or your child have Celiac Disease, it is important to be tested while you are still eating gluten. The blood test used in the first phase of diagnosing Celiac Disease is not effective once you stop eating gluten.

Always remember to check ingredients for yourself because brands change their formulations quite often.

Gluten is in wheat, rye, barley, malt, and some oats. I think the easiest way to do a GF trial without experiencing grocery bloat is to try to eat mostly "normal" food that also happens to be GF. The more you can stick with single ingredient foods, the better.

Some brands say "Gluten Free" right on the label. More and more grocery stores are labeling items on the shelf as gluten free. A few (Whole Foods and Trader Joe's are two) list all their gluten free products on their website. Also, I am not a huge fan of Walmart, but they label their store brand items when they are gluten free.

Random "Okay" foods:
All fruits in their natural state
All veggies in their natural state (be wary of seasoned veggies)
Milk
Most cheese and yogurt (Yoplait is labeled gluten free)
Hormel Pepperoni (also labeled gluten free)
"real" meat like chicken breasts, ground chuck, etc. (Be wary of lunchmeat and hotdogs. Unless you can verify with the manufacturer that they are GF, assume they have gluten.)
Corn tortillas
Rice cakes, including most of the flavored ones (check for "contains wheat")
Rice Chex cereal
Corn Chex cereal (newly gluten free. Check the box because some stores are still selling off their old stock.)
All varieties of plain, unseasoned rice

The main things to look out for on labels are: wheat, rye, oats, barley, malt, modified food starch where the starch isn't clearly identified, "spice", and "flavorings." Manufacturers are required to clearly ID the "big 8" food allergens, so wheat is pretty easy to ID.

Here are some meal ideas that use regular food:

Breakfast: Rice chex, yogurt, cheese, fruit, eggs, plain oatmeal with various additions (WG can tolerate the plain oats in a canister but not the flavored packets. Bob's Red Mill makes certified GF oats.), fruit with peanut butter, cottage cheese, dinner leftovers, crustless pumpkin pie, grits, smoothies.

Lunch: quesadillas on corn tortillas, baked beans (check the label carefully), nachos (corn chips, refried beans, whatever veggies I have to throw on, and cheese), peanut butter on rice cakes, peanut butter on fruit, any of the breakfast options, dinner leftovers, lettuce wraps, stir-fried whatever (watch the soy sauce. Use La Choi or wheat free tamari).

Snacks: rice cakes, fruit, cottage cheese, cut up veggies with ranch dressing (check the label), trail mix with rice chex, raisins, nuts and a few chocolate chips, yogurt, deviled eggs, jello, pudding, hummus and veggies or rice crackers.

Junk food: cool ranch doritos, nacho cheese doritos are newly GF (check the label for barley), cheetos, fritos, plain potato chips, some varieties of flavored potato chips, some varieties of microwave popcorn, McDonald's french fries (they generally have a dedicated FF fryer. Other places fry their chicken nuggets with the fries.), McDonalds cheeseburger without the bun, some ice cream, snickers bars, hershey kisses, skittles, 3 musketeers, M&M's.... There's a lot more. It's scary how much junk you can still eat!

Dinner: This is the easiest meal for me because it doesn't traditionally center around wheat. Watch out for "cream of" soups and soy sauce (La Choy is GF). Also, full fat dairy is a safer bet than reduced fat or fat free dairy. Potatoes are a good stand-in for a lot of things. You can make pizza potatoes with baked potatoes, pepperoni, sauce, and cheese. Things that normally go on noodles can usually go on rice, too. Cornbread made from scratch with only cornmeal is also good, and makes a good breakfast / lunch food, too. I use Pamela's Baking Mix for most of my flour needs. It's $$$ but worth it.

Here are a few GF blogs. The first is that crockpot lady I've posted about on the board. Her daughter has celiac, so even though it's not specifically a GF blog all the recipes are GF. The second I just found, but it seems like she is also cooking for someone who cannot eat gluten.  The third is where I go when I want a great baking recipe.  I'm not a huge fan of Better Batter Flour, but I'm slowly warming up to it.

http://crockpot365.blogspot.com/
http://www.5dollardinners.com/
http://www.glutenfreeonashoestring.com

We saw results with WG in about a week. Her behavior started to improve almost immediately. She still tantrumed, but it was more reasonable. On gluten she would melt down several times within the course of an hour and off gluten she was able to hold herself together much easier. Our first clue now that she's been glutened is that she starts going nuts. The physical symptoms come a day or so later.

If you decide to do a GF trial, I'd make a special place in the cabinet / fridge for all the GF food, "regular" or not. Mark it somehow, a big red GF or something, so that you know no one will make a mistake. It's up to you if the whole family goes GF or not. If Tim and I could eat gluten, I think I'd probably make sure our dinners were GF and not worry too much about breakfast and lunch.

If you decide to just take one child off gluten, make sure you have some junk / treats around that are GF. Think of how sad you would be to see all your siblings having a cookie while you ate an apple. Having something better is key to compliance. I think we were so successful transitioning WG to the GF diet because I made sure to buy junk food every time I went to the store for the first few months. Giving up goldfish crackers and cookies is not so bad when you get to have cheetos and snickers mini's! My strategy was to substitute something better and then gradually cut the junk out altogether.

Udi's GF bread is the only GF bread worth buying IMO.  It holds together for a sandwich, smells, looks, and tastes normal.  You can find it at Trader Joe's and also at some regular grocery stores in the frozen section.  You can also make sandwiches on rice cakes.

I hope this is helpful. Going GF is tough, but you get the hang of it. It's not a cure-all for everyone or every ailment, but you don't have anything to lose by trying.

The worm doctor is in!

WG's favorite thing to do outside is to search for worms in the garden. She has wanted to be a worm doctor for quite awhile, and is very happy that spring is here along with the worms. Unfortunately she loves her patients a little too much and a little too hard and most end up in a better place than our garden. Here she is with her latest patient:

March of Dimes petition

Okay, I am lame. I sent a mass e-mail asking people to sign the March of Dimes petition and then forgot to include the URL. Doh! It is a sign of how things have been going here lately. Too many rehearsals, too much running.... Anyhow, I do urge you to consider signing the petition. 1 in 8 babies born in the US are born too soon. That is WAY too high. Even worse, in many cases there is no clear explanation as to why the baby was born early. March of Dimes is the leader in funding and supporting research on prematurity. They have saved many many lives. Here is the URL for the petition:
http://www.marchofdimes.com/padpetition/index.aspx?a=1&z=1&c=1&l=en

appt updates

WG had two doc appts this week.

Her four-year-old well check was Tuesday. She's around 39 pounds and about 43 inches tall (3 foot 7) which is tall and slim. So, par for the course. WG has been an amazon since birth. Her pediatrician looked at her feet and said, "Those feet are big enough for a six year old!" That's my girl!

We talked a lot about her sensory issues. Sensory Integration Disorder seems to be the trendy dx of the times. Like ADD/ADHD, it's a tough call. Certainly the disorder exists, but when does quirky cross over to disfunction? Preemies especially seem to have sensory issues. This has been a battle in one way or another with WG since birth. She has always been funny about her feet, which makes sense since preemies are subjected to several heel pricks every day. When the child refuses to put their feet on the ground (in WG's case as a baby) it clearly crosses over to the problem area. You can't learn to walk if you won't put your feet down. The issues right now are related to her perception of (or more accurately, lack thereof) pain. Well, that's my biggest concern, at least. I'm scared silly that sometime she will have some sort of infection and we will have no idea until things get serious because she doesn't experience pain the way most of the population does. WG's also a very physical child: spinning, leaping, hanging upside-down, in-your-face. The dare-devil stunts coupled with the lack of natural consequences pain-wise is a frightening combination. Does this cross the line from normal quirky four-year-old behavior? I don't know. It causes stress in our home, which is why we talked to the pedi about it.

We also talked about speech, learning, eating. The pedi, at least, seems glad that she's still GF. Her own daughter has celiac so she has done a lot of research into it lately and realizes that going GF can greatly benefit many many people, not just dx'ed celiacs.

WG had another follow-up with the GI doc today. Mostly routine. She is still constipated so we're upping the Miralax to twice a day and staying the course with the Prevacid. (BTW, the discount card worked but it took 4 Pharm. Techs at Walgreens a good 20 minutes to figure out how to do it. Hopefully now they know and it won't be a production every time she needs a refill!)

A good resource

WG is taking Prevacid for reflux and whatever else is going on in her tummy. We have pretty good prescription drug coverage, but it's still a $30 copay every month. Add to this that she is taking two other GI meds and it gets expensive quickly.

A friend tipped me off that Prevacid offers a "frequent buyers" program of sorts. If you sign up on their site, they will send you information about prevacid (of course) as well as an instant rebate card that takes $25 off each refill. No forms to fill out each month, you just give the card to the pharmacist and get the discount. We got WG's card today just in time because she needs a refill.

Here is the URL to sign up for the program: https://www.prevacid.com/offers/landing.aspx I put in WG's information (name, age, etc) which was strange because she's only four, but it seems to have worked. I have no idea if Prevacid will spam me or send us things in the mail, etc, but honestly, for $25 a month in my pocket I don't really care!

Endoscopy follow up

WG had her follow up with the GI doc today. In a nutshell, nothing new. All the allergy tests came back negative, she tested WG again for the celiac gene: also negative (again), nutritionaly she is also doing okay. The biopsies just confirmed what she saw: irritated, angry, enflamed GI tract.

SO, the game plan for now is to finish the carafate, stay on prevacid and add miralax for the next month for constipation. WG is horribly constipated. Who knows if this is due to her tummy woes or if it's due to the prevacid / carafate. Constipation is a side effect of both drugs.

The doc asked if WG was having any stomach pain. I told her that it was hard to say because WG has a very high pain tollerence and would do just about anything (including lie) to avoid having to go to the doctor. Also, as our friend pointed out to me, WG has had so many chronic tummy issues that she probably doesn't know if she is in pain.

WG will see the GI again on August 21. She has her four year (!) well check on the 19th, so an appointment filled week for her. I was dissappointed that we were put on a short leash (three weeks between appts). I was hoping that she would get a three month window before needing to be seen again. Her doc is concerned about the constipation (WG is bleeding with BM's) and also thinks that an emptying study may still be in her future, so three weeks it is.

Endoscopy update

WG's endoscopy went well. Here are the results in a nutshell:

* The pancreatic rest is not causing a blockage (YIPPEE!!!!!!)
* She has damage to her esophagus from GERD
* The lining of her stomach is inflamed
* The tissue of the upper part of her small intestine is inflamed and friable (which I understand to mean brittle)

The results of the abdominal ultrasound and barium swallow were normal, which we figured. They didn't show anything last go-around either. We won't know the results of the biopsies or the allergy testing until her follow-up appointment which is July 22nd. In the meanwhile her GI doc has added carafate to the prevacid. She also mentioned that she thought that WG's stomach might not be emptying as it should. Tim and I would concur with this since there are times that WG vomits in the morning and her dinner from 12+ hours before is completely undigested. There is a good possibility that an emptying study is in WG's future.

WG did pretty well with the whole thing. She freaked out when they did her vital signs at check in and then again when they were ready to take the tape off her hand to take the IV out after the procedure. She recovered swiftly from the anethesia and was very anxious to get her "huey-huey." She's back to running around and being herself this afternoon. Tim and I, on the other hand, are beat. Neither of us slept well because we were anxious and then we had to be at the hospital at 6:45am. Tim is currently napping and WG and I are about to join him.

The other shoe...

WG is having some health issues again. When she was somewhere around 6 months old she started vomiting for no apparent reason. At it's worst she would vomit 15 to 20 times a day. When the gastroenterologist did an upper endoscopy he found the cause. WG has a pancreatic rest, which is basically a volcano-shaped mass of pancreatic tissue that has grown on the inside of her stomach. Many people have pancreatic rests and never know because they never cause problems. The unique thing about WG's rest is it's size (it is huge) and it's placement. At the time it was causing a blockage and her food couldn't always pass through. We took a "wait and see" approach hoping that as she grew the blockage would lessen and the vomiting would stop which is what happened.


About two months ago, WG started vomiting again. For various reasons (in the interest of not making YOU puke I won't be graphic) it is obvious that something is not right in tummyland. She saw a different gastroenterologist (her usual GI doc is on vacation) who decided that it would be a good idea to see what is going on with the rest. WG had an ultrasound and barium swallow and will undergo another upper endoscopy scope tomorrow morning. While she is under for the scope they are also going to take blood for extensive food allergy testing.


Tim and I are going okay. We've sailed these seas before.... We are being proactive with trying to figure out what is going on this time instead of waiting until she is throwing up nearly every meal. She is also not a frail little baby anymore. WG (finally) has some heft to her. Right now she is at the 95th% for height and the 75% for weight. When we went through this the first time she was around the 98th% for height and the 30th% for weight. There is more wiggle room before panicking about weight loss this time. WG has been a real trouper through it. She did very well with the first round of tests. I don't think she knows what's going on tomorrow, just that she is headed to the hospital and that when she is done (and is up to it) she will get to go pick out a "huey-huey" aka a hula hoop. WG has wanted a huey-huey all summer.

I will post an update when we know more about what is going on. We have always conferenced with her GI directly after the upper endoscopy so I expect that will be the case tomorrow.